Policy responses and statements
Background: NHS Connecting for Health is gathering people’s views to help it make important decisions about the ways the NHS can use information it collects about patients. Such patient data is mainly used to provide care and treatment but can also have additional uses such as research, auditing the quality and safety of care, management planning, etc. This consultation is focusing on additional uses. Audience: The consultation sought the views of the general public, patients, patient groups, NHS staff, the research and ethics community, regulators and professional bodies. In addition, NHS Connecting for Health contacted a number of groups directly to invite them to respond to this consultation. Background: Patients’ records have always been used for purposes other than providing care, for example for planning new NHS services and for medical research. Because patient records will increasingly be held on computer rather than paper, it is becoming easier to collect and use patient data for these purposes. Normally data used in these ways does not show the individual patients’ details, but sometimes it is not useful unless it identifies individual patients. The following questionnaire invited views on when and how the NHS should use patient data for additional uses. Download this consultation response as a .pdf
Copies of this response are available from: Lesley Lockhart, Tel: 0131 225 7324 ext 608 [12 December 2008]
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